Who we are
Deafblind UK is a national charity supporting deafblind people.
We are a registered charity (802976) and a company limited by guarantee (2426281). Our registered office is National Centre for Deafblindness, John and Lucille Van Geest Place, Cygnet Road, Peterborough, PE7 8FD and we have services throughout England, Northern Ireland and Wales.
What information do we collect?
We collect information from you for a variety of reasons, including:
• when you make a donation
• to respond to your enquiry
• to provide support or a service
• when you fill in a form on our website
• when you register your interest as a volunteer or supporter
We may collect personal information, such as your name, address, email and other details that enable us to identify you. We may also collect sensitive personal information relating to you and your circumstances if you receive a support service from us service or ask us for very detailed advice. This might be information about your medical condition(s) for example. We need your consent to hold and use this information.
People sometimes contact us providing personal information about a third party. We collect that information on the understanding that you have that third party’s permission to do so.
How do we use your information?
We use the information to respond to you, to inform the future contact you have with Deafblind UK and to help us understand more about who is in touch with us and why. Sometimes we may use additional information to enhance the data we have, so that we have a better understanding of our supporters.
We may combine your information with other information (for example, from public records or on social media) and create a profile of your interests and preferences. We do this to help us determine whether and in what ways you might be interested in helping us or getting involved in our activities. If you’d prefer us not use your information in this way please email email@example.com.
Information will only be shared amongst Deafblind UK staff on a need-to-know basis.
We do analyse and report on data about the number and nature of contacts with the organisation. These reports do not contain information which enables you or other individuals to be identified.
We may from time to time use the experiences of our members and volunteers to explain the scope and impact of the support we provide. In these circumstances we will either anonymise any personal/identifying information or we will obtain full consent from you to use your information.
Who do we share information with?
We will not sell or rent your information to third parties.
We will not share your information with third parties for marketing purposes.
We may also pass your information to our third party service providers, agents subcontractors and other associated organisations for the purposes of completing tasks and providing services to you on our behalf (for example to process donations and send you mailings). However, when we use third party service providers, we disclose only the personal information that is necessary to deliver the service and we have a contract in place that requires them to keep your information secure and not to use it for their own direct marketing purposes. Please be reassured that we will not release your information to third parties for them to use for their own direct marketing purposes, unless you have requested us to do so, or we are required to do so by law, for example, by a court order or for the purposes of prevention of fraud or other crime.
On occasions we will provide personal data to external organisations who are working with us on a specific project or the delivery of specific services. If we have been asked by a local authority to provide a service for you, it is likely that we will be providing at least some of your information to them. We may also need to provide the information to a regulator such as CQC. This is done under strict agreements regarding the security and confidentiality of all personal data.
We will not contact people unless they have expressed an interest in our work, for example by making a donation. We will act quickly on any requests to end contact, or get in touch less frequently or in a different way. If you are registered on the Telephone Preference Service we will only call you with your explicit permission. We will never sell your data.
Deafblind UK takes online payments and donations through our website. All payment details go through the secure servers of our third party payment providers, Charities Aid Foundation (CAF). For more information about this and the personal details we receive (excluding bank details) please read the next section about online forms.
We only ask for the information we need. Forms submitted online are automatically turned into an email and sent directly to a member of staff. We cannot guarantee it will be confidential whilst in transit to us. Alternatively you can print out and send us the form.
Visits to the website
The information generated by the cookie about your use of the website (including your IP address) will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activity for website operators and providing other services relating to website activity and internet usage. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf.
The information allows us to evaluate and improve the accessibility and content of our website.
How do we keep your information secure?
All your personal information is held securely in accordance with the Data Protection Act, 1998.
If you contact us electronically, by email or from our website, we cannot guarantee your information remains private whilst it is in transit across the internet.
How do I update or correct information, and how do I stop Deafblind UK from using my information?
If you would like to update or correct details held by Deafblind UK, or stop us from using your information, please email firstname.lastname@example.org.
If we make contact, you will always be given the option to decline or opt out of any future communication with Deafblind UK.
How do you find out about the personal information we hold about you?
Please email email@example.com or write to us at National Centre for Deafblindness, John and Lucille Van Geest Place, Cygnet Road, Peterborough, PE7 8FD. If the request is valid, we will tell you what we can about the information we hold and supply a copy (or an agreed portion of it).
If I am under 16, can I provide personal information to Deafblind UK?
If you are aged 16 or under, please obtain your parent / guardian’s permission before you provide any personal information to Deafblind UK.
We may change this Policy from time to time so please check this page occasionally to ensure that you’re happy with any changes. By using our website, you’re agreeing to be bound by this Policy.
For any questions relating to this policy and our privacy practices, please email firstname.lastname@example.org or write to us at National Centre for Deafblindness, John and Lucille Van Geest Place, Cygnet Road, Peterborough, PE7 8FD. Alternatively you can call us on 01733 358100.
This policy was last reviewed on 11.01.17