At Deafblind UK, we are committed to keeping the trust and confidence of everyone who comes into contact with us. So it is important that you know we process your personal data when you do things like become a member and use our services. We want you to trust us with that information.
What’s in this policy?
• why we collect your data
• who we are
• what types of information we collect
• how do we collect this information
• how we will use your information
• how we share your information with others
• how long we will hold your information
• your rights and how you can access your information
• updating your preferences and stopping communication from us
• making changes to your information
• how we store your information
• how to contact us
Why we collect your data
We collect your data to:
• To provide you with the information you have requested
• To communicate and manage our relationship with you
Who we are
The Deafblind UK is registered as a data controller with the Information Commissioner’s Office and our registration number is Z5842389
The Deafblind UK Group is made up of-
Deafblind UK Registered Charity Number 802976 and Registration Number 2426281, Our registered office is National Centre for Deafblindness, John and Lucille Van Geest Place, Cygnet Road, Peterborough, PE7 8FD and we have services throughout England, Northern Ireland and Wales
About Me Care and Support Registration Number ZA316876 and Company Number: 7945990
Deafblind UK Trading- Registration Number ZA316890 and Company Number 05082057 – are wholly owned subsidiaries of ours which trade on our behalf. That means they are part of Deafblind UK, and we own them – we are their ‘parent’.
What types on information do we collect?
This means any information that may be used to identify you, such as, but not limited to, your name, telephone number, postal and email addresses.
Special Category Data
We do not collect any special category data in relation to your connection with Deafblind UK
How do we collect this information?
We collect information when you do things such as:
• Register on our website
• Consent to receive Open Hand
• Complete an enquiry or event registration form
• Provide us directly with personal data
How we use your information
We collect your information because we need it to help us fulfil your requests, keep in touch with you, and offer you communications that you have requested.
We only process your data with your consent.
The information you provide will be used to:
Communicate with you and manage our relationship with you
Personalise and improve your customer experience
Provide you with the information you have requested
keep a record of any communications between us and you, for example emails and phone calls
responding to complaints or queries
Sharing your personal data
Your personal data may be shared with other companies within our Group.
We will not sell or rent your information to third party organisations, and we will not share your personal information for others to use in their marketing or fundraising.
We use carefully selected companies to provide services on our behalf, including delivering postal mail, sending emails, data storage and analysing data.
These companies are: Blackbaud, MailChimp, Snapsurvey, Ethical IT and Print for Biz
We will only provide those companies with the information they need to deliver the relevant service, and we make sure that your data is treated with the same level of care as if we were handling it directly. We disclose only the personal information that is necessary to deliver the service and we have a contract in place that requires them to keep your information secure unless we are required to do so by law, for example, by a court order or for the purposes of prevention of fraud or other crime.
This policy may change, but we will always have the latest version available for you on our website. This policy will be reviewed at least annually. If there are any major changes, we will add a notice on our website or contact you. This policy was last updated on 18th May 2018.
How long do we hold your data?
We operate a Data Retention Policy to ensure that data is not held for longer than necessary, if you would like to request a copy please email firstname.lastname@example.org
We will hold your information for as long as you have an active relationship with you. After this relationship has ended your information is archived for five years and then deleted/destroyed
We are committed to upholding your rights. Under the General Data Protection Regulation you have the following rights:
• to be provided with access to your personal data held by us;
• to request the rectification or erasure of your personal data held by us;
• to object to the collection of your data and request that we cease processing your data;
• to request that we restrict the processing of your personal data while we investigate your concerns with this information;
• to not be profiled and object to solely automated processing; and
• to request that your data be transferred to a third party (data portability).
Accessing your rights
To access any of your rights above , please write to Deafblind UK’s Data Protection Officer at:
Post: Data Protection Officer
National Center for Deafblindness,
If you would rather speak to someone, please call 01733 358100
We try our best to respond to all enquiries within five working days of receiving them, and will offer a full response to all access requests within one month.
Updating your preferences and unsubscribing
You are in control of how we contact you. If you would like to withdraw your consent of any of the services you receive from Deafblind UK please email: email@example.com or calling 01733 358100
If your personal details change or you would like to change your preferences please emailing firstname.lastname@example.org or calling 01733 358100
How we store your information
We ensure there are appropriate technical controls in place to protect your personal details, for example our online forms are always encrypted (this prevents other people accessing them) and our network is protected.
Where is my data stored?
Your data is held in secure paper and computer files. These have restricted access. Where your data is held in paper format we have secure storage and processes for this. We have measures in place to stop unlawful access and disclosure. All of our IT systems comply with the security required within GDPR to make sure that personal data is processed in a manner that ensures appropriate security of the data including protection against unauthorised or unlawful processing.
Transfer outside the European Economic Area (EEA)
Data held by Blackbaud INC, data process on behalf of Deafblind UK, is stored and backed up outside the EEA.
All DBUK Group buildings are covered by CCTV. Signs are displayed and clearly visible in all locations where CCTV is installed. For more information on how long we store these recordings please see our Data Retention and Deletion policy.
What is a cookie?
• remember certain information about users so they do not have to give the same information more than once
• recognise if users are already logged in to certain areas of the website
• measure how people use our website so we can improve the way information is provided
You can find out more about cookies and how to delete or control them at: https://www.gov.uk/help/cookies
Cookies set by third parties
We also use Google analytics cookies (__utma, __utmb, __utmc, __utmz), which are used to measure how people use our website. We look at reports to make sure that our website is providing the best possible service for our users. Google analytics does not identify you personally – it just collects data about your visit to our website.
This Website uses Google Analytics’ instead?
The information generated by the cookie about your use of the website (including your IP address) will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activity for website operators and providing other services relating to website activity and internet usage. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf.
The information allows us to evaluate and improve the accessibility and content of our website.
When you visit and look around our website, we record things like your IP (internet protocol) address – the unique number of the device you are using to access our website, which pages you visit (on our website only), when they were visited, and the type of device you were using. This information helps us create a better experience for everyone who uses our website.
Examples of the type of information that can be collected using your IP address include the type and version of your browser, and the location from which you are accessing our site. This helps us improve how our page templates appear and change content to make it relevant to our website visitors.