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The right to an assessment

For years, Deafblind UK and other charities have campaigned for the rights of people with dual sensory loss. This has now been acknowledged in specific legislation (The Care Act 2014) but do enough people know about this? We wanted to discover whether people with sight and hearing loss know that they are entitled to a … Read more

NICE approves first treatment on the NHS for an inherited retinal dystrophy

Deafblind UK are delighted to share the news from Retina UK that the National Institute for Health and Care Excellence (NICE) has recommended  Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an inherited retinal dystrophy. The Retina UK community has played a critical role in influencing NICE’s … Read more